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CAD Patient Brochure
Comprehensive brochure for patients and caregivers that cover all aspects of CAD, including symptoms, how CAD works in the body, glossary, and other information.
The brochure includes a printable Tools and Resources section that contains the following: Impact of CAD Tracker, Doctor Discussion Guide, Blood Lab Card, and Blood Test Tracker. These resources can help monitor you monitor your disease, support you in your conversation with your doctor, as well as ensure that your lab technician knows to keep your blood sample warm.
CAD Flashcard
Educational flashcard for CAD patients to share with those in their community (family, friends, neighbors, colleagues, etc.) so that others can understand the basics of what it is like to live with CAD.
Desktop and mobile-friendly versions available.
Want more information about CAD?
There are a number of organizations dedicated to providing information and support to people
living with CAD and other rare disorders. This listing is provided as a resource only and does not
constitute an endorsement by Sanofi of any particular organization or its programming.
Additional resources on this topic may be available and should be investigated. Sanofi does not
review or control the content of these non-Sanofi websites.
Cold Agglutinin Disease Foundation (CADF)
A US-based patient advocacy organization dedicated to creating healthier lives for the CAD community of patients, and committed to educating them, their care partners and the medical profession about this rare disease.
CADF has a World Wide CAD Specialist Locator Tool where you will find a map and physician/specialists directory, including information which has been provided and shared by fellow CAD patients.
Rare Anemias International Network (RAIN)
A global, community-based organization of patient advocacy groups, healthcare professionals, and individuals who advocate for the rights of people living with rare and ultra-rare anemias.
RAIN has created a Patient Toolkit to help people living with rare anemias navigate through reliable and updated information and knowledge related to the diagnosis, treatment, quality of care and new advances in the field.
Rare Revolution
A Independent not-for-profit publisher dedicated to elevating the voice of the rare disease community through its magazine, online presence, disease awareness campaigns, patient engagement projects and social media.
Rare Revolution aims to bring about a dramatic and wide reaching change in conditions and attitudes for the rare disease community. They have featured a story about CAD patient Jörg’s experiences and a webinar series on CAD (see our Patient Stories page).
Orphanet
A unique resource for gathering and improving knowledge of rare diseases.
EURORDIS
A European non-governmental patient-driven alliance of patient organizations representing 1000 rare disease patient organizations across 74 countries.
National Organization for Rare Disorders (NORD)
A patient advocacy organization dedicated to people with rare diseases and the organizations that serve them.
Global Genes
A global community dedicated to helping patients affected by rare disease find and build communities, gain access to information and resources, and become effective advocates.